If you are a physician or social worker and would like to refer a patient to the OKBTF for services, fill out the patient referral form. If you would like us send you a physician resource packet, please e-mail us with your mailing address and contact information.

Download and print the following OKBTF forms

Patient Referral Form 

Local Physician Referrals

OU Cancer Institute

Children’s Hospital

ProCure Pronton Therapy Center

Resource Links for Physicians

American Association for Cancer Research

American Association of Neurological Surgeons

American Association of Neuroscience Nurses

American Society of Clinical Oncology

American Society of Neuroimaging

American Society for Stereotactic and Functional Neurosurgery

American Society for Therapeutic Radiology and Oncology

Brain Science Foundation

Canadian Congress of Neurological Sciences

Congress of Neurological Surgeons

The Goldhirsh Foundation

The Jackson Laboratory – Mouse Information and Services

Neuro-Oncology Branch: for Professionals

Pediatric Brain Tumor Consortium

Society for Neuro-Oncology

Society for Neuroscience

The Sontag Foundation

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Categories: Programs & Services

The Family Circle of Care Program is a great program offered by the Oklahoma Brain Tumor Foundation to assist caregivers with the enormous amount of stress, worry and anxiety associated with caring for a loved one with a brain tumor. OKBTF Case managers work with caregivers to identify needs and to identify family members, friends and others interested in helping. Case managers will then facilitate and put your Family Circle of Care team into action by calling team members via the phone (at least 5 family members or friends) or by calling a team meeting.

Please call to set-up your Family Needs Assessment meeting or if you have already met with a Case Manager and would like to take advantage of the Family Circle of Care Program, please call the office at (405) 843-4673 to speak to a Case Manager.

Other Resources for Caregivers:

There are other resources available on the Internet that have similar programs to the Family Circle of Care Program that you can set-up yourself. Visit http://www.bts.lotsahelpinghands.com/, they have a similar program that is web-based and manageable yourself.

Understanding Caregiving

A brain tumor is a disease with unique problems. When someone you love is ill, you probably want to do all you can to help them. But caregiving can produce enormous stress, worry, and anxiety. Your role is important, and it is also important to take care of yourself and your own needs.

The diagnosis of a brain tumor forces families and friends to cope with difficult feelings, such as guilt, ambivalence, and frustration. You might feel overwhelmed, exhausted, challenged, angry, frustrated, and emotionally numb. All of these feelings are completely normal. They will ebb and flow along with good and bad days. Be sure to find a safe way to express your feelings so that they don’t spill over at the wrong time.

Unfortunately, caregivers rarely receive enough validation for what they are feeling and experiencing, or for the amount of work and time they devote to this role. You may have put your own life on hold to care for another, and this can stress families and relationships. So much attention is placed on the patient that caregivers may not receive or seek the support and encouragement that is needed.

The emotional strength and patience required to care for someone with a brain tumor is beyond comprehension for many people. Because brain tumors are so rare, many patients and caregivers feel isolated, and support is not always readily available.

Coping with the late stages of a terminal brain tumor can be extremely difficult for everyone. The patient’s medical team will not be able to tell exactly what to expect at the end. Patients go through ups and downs, so caregivers may feel uncertain of and unprepared for what will happen next. Caregivers cannot forget that even while caring for another they must take care of themselves.

Make it Easier…..

You are only one person and cannot do everything by yourself. Ask family members and friends to help out. People often want to help in such situations but are not sure what they can do. Make a list of the ways others can help, and delegate those responsibilities as needed. Everyone in the family should be involved, in some way, in taking care of an ill family member. Consider each person’s abilities and assign tasks accordingly. Allowing others to help will allow you to take some needed time off from caregiving.

Protect Yourself

Protect yourself from unnecessary stress and work. Learn to say no to added responsibilities and take a step back. This might make you feel guilty, but it is important to think of yourself. Be realistic about what you can handle, both physically and emotionally. Even the most committed caregivers are only human and have limits to their patience and strength.

Get Support

Support can come in different ways. Simply sitting down with a trusted friend and talking about your feelings can do wonders. A brain tumor support group can offer invaluable help. Sometimes, however, those things are not enough. If you continue to feel overwhelmed, frustrated, anxious, or depressed, you may want to speak with a professional therapist. The OKBTF has volunteer counselors available who are free of charge and willing to help. Please contact the OKBTF office and let us know you would like to set up a meeting with a volunteer counselor.

A good source of support for caregivers can also come in the form of support groups. The OKBTF has support group meetings available where you can meet other caregivers and patients and learn through each others experiences, share information and just comfort one another. It is important to remember you are not alone. Click here to print or view a list of upcoming support group meetings.

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Categories: Programs & Services

The Oklahoma Brain Tumor Foundation is an outpatient mental health provider.  We work with families who have a family member who has been diagnosed with a primary brain or central nervous system tumor. The challenges facing one family may be different than the challenges faced by another family.  We will work with you to address the challenges and needs your family is facing.  We will work to put a plan in place to address those needs and will work hand-in-hand as a part of your health care team to improve your quality of life and your ability to survive and thrive.

The following are some of the services we provide:

Counseling: Our Licensed Professional Counselors can work with your and your family to address any of the issues and challenges that you may be facing such as: anxiety, depression, crisis diversion, substance abuse, panic attacks, behavioral issues, emotional and psychiatric disorders, etc.

Individual Counseling Services

Family Counseling Services

Group Counseling Services

Marriage and Couples Counseling

Grief Counseling

Re-Emerge Cognitive Retraining Program

Patient Navigation/Case Management Services:  Our Patient Navigators can work with you and your family to help you navigate complex system such as Social Security, social services, health insurance, Department of Human Services, your health care team, health care access issues, mental health systems, special education, and can help link you to sevices within the community to help address complex and diverse social challenges.  Some of those challenges are listed below.

Financial Assistance: The OKBTF assists primary brain and central nervous system tumor families with financial assistance for doctor co-pays, insurance premiums, prescriptions, utilities, rent, mortgage, transportation needs, etc. If you are struggling financially, let us help you make ends meet. Families must schedule a Family Needs Assessment and a determination of financial need must be met.

Education: The OKBTF helps educate patients, caregivers, family members and friends through a variety of different resources. We have printed material available and resource links on our website www.okbtf.org regarding a variety of different issues. Brain tumor families may have questions regarding.

Computer Donation Program: The OKBTF’s computer donation program donates computers to families who meet our financial needs qualifications who do not have a computer to meet their needs at home. We can also assist with providing internet access.

Advocacy: Let us work on your behalf with the Social Security Administration, the school system, your employer, doctors, hospital or insurance company to help alleviate any stressful situations that may be occurring. Our patient advocates can act as a liaison to help overcome any issues that may arise.

Prescription Assistance Program: The OKBTF can help get you approved for prescription assistance through major pharmaceutical companies if you do not have health insurance and meet their financial qualifications for assistance. Give us a call and let us work for you!

Wellness Classes/Support Groups: If you are interested in joining one of our support groups, please call the OKBTF office at 405-843-4673 for more information. Check out our upcoming support group meetings.

 

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Categories: Programs & Services